Adenomyosis – search for a natural cure

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I have written about my very heavy periods before

since then things have gotten worse and I have been diagnosed with something called Adenomyosis. Which is basically the cells from the lining of the uterus getting into the muscle layer and then every month when you have a period you bleed into the muscle which results in tearing and swelling of the uterus.

Signs and Symptoms from WiKi
Some women with Adenomyosis do not experience any symptoms, while others may have severe, debilitating symptoms. The endometrial implants that grow into the wall of the uterus bleed during menstruation (the same as endometrial tissue bleeds) and are discharged vaginally as menstrual bleeding. The vaginal pressure can be severe enough to feel like the uterus is trying to push out through the vagina, like the first stage of labor when the baby’s head pushes into the cervix. Other symptoms include;

  • Intense debilitating pain all the time and/or
  • Acute & increasing pain at menstruation and ovulation
  • Strong ‘contraction’ feel of uterus
  • Abdominal cramps
  • A ‘bearing’ down feeling
  • Pressure on bladder
  • Dragging sensation down thighs and legs
  • Heavy bleeding and flooding
  • Large blood clots
  • Prolonged bleeding i.e.; up to 8–14 days

I have most of these. The pain is indescribable. It is like a labour contraction that just does not stop. It cramps and does not let go.

I have been taking Cyklokapron for a few years now and this helps with the very heavy flow, it now means that I can leave the house. Before I used to fill a menstrual cup in under and hour and would often flood. I had to get up a few times at night to empty the cup. I can now get through the night, most nights.

My pain killers have been anti spasm drugs like Scopex and anti inflammatory drugs, paracetamol. If these don’t work I move on to Myprodol, then Tramahexal which is like a horse tranquilizer and makes me feel whoozy. I cant drive and am not much good at looking after the children so I tend not to take them unless The Geek is home. They also make me vomit so I have to take anti nausea drugs with them. I am like a walking chemical lab and it only takes the edge off I am still usually in a lot of pain. I don’t like taking a lot of medication and I really want to try find better solutions.

The doctors have nothing to offer me. I could have the Mirena but because the legions ( growths of cells in the muscle) are so big the Dr was not sure it would even sit properly and I don’t have R5000 to try it out. It also has some side effects I am not keen on.

The other option is a hysterectomy: If i don’t need it why not take it out. Sounds great but then there are a whole host of problems that can happen with not having a uterus. If you read HERS Foundation you can see that it is not always as good outcome for everyone. While I realise that this site might attract those who have had problems and are searching for answers and so might be disproportionally skewed towards the negative, these are still things to bear in mind. The biggest and unbiased fact is that women who undergo hysterectomy, even when leaving the ovaries in, go into menopause 5-10 years earlier and this does pose some significant health risk.

The bottom line is that I just do not want a hysterectomy so I am off on a mission to find other things that might helps. I am keeping track of my journey here and maybe it helps someone else.

Heavy bleeding and PMS are often signs of Estrogen dominance so I have been doing some reading and seeing in there are natural alternatives to balancing female hormones.

These are the things I have tried or am going to try and I will write separate posts about them as there is a lot of information

– Cutting out all coffee
– Heat, hot water bottles and hot baths ( these really work)
– Going gluten and grain free
– doing whole 30 ( scheduled to do this with my sister starting 9 June after she is finished comrades)
– Yoga – going to start this week
– supplements and vitamins

I am willing to try anything. If you have heard of something that might help to balance hormones please let me know and I will try it and blog about it.

9 thoughts on “Adenomyosis – search for a natural cure

  1. Sjoe honey. I am so sorry you have to go through this.

    I’m going to suggest that you go and see a Naturopath-type Dr – there MUST be something that can help. My one friend took Tissue Salts – not sure if they really helped her. Pretty sure she took something called Ferus phosphate. We’ve lost touch but I will see if I can locate her and then I’ll ask. xx
    ps…you have WAY more patience than me. I am too impatient to wait for natural remedies to work so if it were me I would just go and get a mirena inserted. Or I would go on the pill. However, I know that this is not what you want. I hope you find something that works.
    pps…I have to say that eating food that is as “clean” as possible i.e. no additives, preservatives etc makes a huge difference to me. Also cutting out dairy. Do you still have dairy? Maybe try to cut that out and see?

    • I can’t take the pill or most hormones Julia, I have had what are called complex migraines which have an increased risk of stroke so I have very few options

  2. Wow – I know of another woman who went through this: she had a hysterectomy and she was fine. Her tales of woe were quite similar to yours.

    I had the Mirena twice and would seriously recommend it – I had no period which is amasing and you’ll save your R 5000 in five years of sanitary products. I think it’s less expensive if you purchase it yourself (you can get it at any Dischem) and have your GP insert it. The only hitch that I would mention is that if you have a family history of anxiety and depression, you may want to ask your doctor about it first. Otherwise – it is absolutely worth it.

    Good luck!

  3. I was also diagnosed with adenomyosis mainly due to the backpain I experienced during my period. My doctor told me that the alternative to a hysterectomy (she said that was the last resort) was an ablation. This is where they burn out the lining of your womb so that you no longer have a period. But when you suffer from adenomyosis this may not stop your period completely as your blood vessels have grown into the muscles so those could still swell and cause pain and obviously your hormones still go haywire around that time of month. I decided to go for it anyway and had a laporoscopy to check for other issues(hernia, fibroids etc) as well as a colonoscopy and gastroscopy.
    They found that my colon was double the normal length and this could be contributing to my backpain by causing additional pressure on the spine. They did not find anything else. After the ablation I still had mild periods for a while but it seems to have stopped completely now. I do still sometimes have fairly severe back pain, it may be over my normal menstruation time but is not regular so hard to tell. So to sum it up, maybe you should discuss ablation with your doctor but I don’t know if it will help you as yours sounds much more severe than mine ever was.

  4. I suffer from endometriosis, but most of my pain is related to the damage caused by the cysts and adhesions that they create. Which means though my periods are incredibly painful they aren’t heavy. The endo diet didn’t do anything for me except make me feel a bit healthier and more energy, but I’ve got the same result as that without worrying too much about it and just eating more fruit and veg. My friend however swears by the endo diet. It really helped her periods become less painful and heavy. I think it may be worth looking at for you as the hormone treatments are out. I’d like to also point out that the mirena was a nightmare for me. I basically bled for 18 months and it crippled me. I only stuck with it so long because we had tried everything else, however, I do know women who have had their lives transformed by it. But, if you don’t have the money to pay for it (thank goodness for the good old NHS or I’d be bankrupt by now) then I just thought I’d tell you that it might not give you a good result anyway.

    I hope that you find the right solution for you – me I have the pill back to back and many, many painkilling drugs.

    • Thanks for your comment. I am hoping the whole 30 helps. I am on Day 8 and besides being a little boring it is going okay.
      I have now eaten through my stomach lining with painkillers and can feel the ulcer starting so not sure what next cycle will bring not being able to take anti inflammatories. I must look up the endo diet is it similar to Paleo, whole 30 stuff?

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